What matters historically?
Many historical individuals with deaf-blindness or
sensory impairment and their family members…
These pioneers became role models, and shifted expectations and standards
for how youth and adults with dual sensory impairments learn,
and live, and connect with the world.
Francis Goya (1746-1828)
Spanish painter who lost hearing as adult, yet continued to paint.
He later lost his vision as well.
James Mitchell (1795-1869)
Born with congenital deaf-blindness, he used curiosity,
touch, taste, and smell to learn, and gestures to interact.
Sanzan Tana (1802-1867)
Japanese teacher who lost his hearing as child, and then lost his vision as adult.
He communicated with his students using touch.
Laura Bridgeman (1829-1889)
The first deaf-blind child successfully educated in U.S.
She learned written English using raised letters
as Braille and ASL were not yet created.
Helen Keller (1880-1968)
American author, activist, and public speaker.
She became deaf-blind as a toddler due to illness.
As a young adult, she became the first
deaf-blind person to graduate from college
(which she did with honors).
Educator, African-American pioneer,
pianist, poet, author, fashionista,
and Harry Potter fan.
Richard Kenney (1924-1979)
Educator, lecturer, and poet.
He served as a president of the
Hadley School for the Blind.
Robert Smithdas (1925-2014)
Author, service director, and first U.S. person
with deaf-blindness to earn a Master’s degree.
Vaughn Brown (1980s – present)
Award-winning drummer and music teacher
who lost both hearing and vision during childhood.
What matters now, and for the future?
Celebrating youth with deaf-blindess or sensory impairment
and their families who have been involved with CBSS across the years!
We celebrate CBSS children and families — because they matter.
See information below, and share your child and family celebration here!
Videos, Blogs & Links
- CVI MOMIFESTO — a blog created by Rebecca Davis, mother of Eliza, with the mission of “Building a Community of Parents of Children with Cortical Visual Impairment.” The blog entries — which weave together both information and inspiration — are posted to both her Facebook page and a dedication blog website (see links above).
- Entries are posted with newest blog at the top of the page, and include:
- “Vision Time” is not a thing. Incidental Learning is. Part One.
- The Dance of the CVI Mom at an IEP (Could I Put More Initials in a Title? A-OK!)
- Kids Can’t Wait
- Momifesto: A Definition
- Celebrating Orion’s Journey — Heather Withrow, a mom who is deaf, shares her family story into the world of deafblindness that began before her son, Orion, was born, including her experiences with early intervention and Connections Beyond Sight and Sound.
Length: 4 min 53 sec —-> Watch here…
- 2016 Update on Orion — Razor Fundraiser and Orion’s Deaf-blind Intervener Internship Fund… —> Watch here…
- 2017 News article on Orion — A mysterious medical condition gets a name — and a genetic link to deafness —> View here…
- “A Mom’s Musings: Orion the Kid” — Facebook blogs, photos, videos, and more from Heather Winthrop, mom of Orion –> Watch here…
- A blog about hope, despite the disabilities — by Ellen Moore, mom of Katherine –> Watch here…
- Blog entries are posted with most recent at top, and with a “category” selection option on the right sidebar (e.g., Acceptance, Doubt, Gratitude, Perspective…)
Recent blog entries include —
- What Causes Stress?
- Can’t is a Four-Letter Word
- Training Nurses
- We Never Know What Helps
- The Present of Being Present
- Writing to Be Cool
- What Dishwashing Taught Me
- What is Normal?
- I Ran on Streets of Gold
- “2015 Fantasy Flight” — a series of by Ellen Moore (“Katherine’s mom”) capturing the essence of a family holiday activity and what it means to her family as they journey through life, while impacted by deaf-blindness. Fantasy Flight is an annual event sponsored by Children’s Hospice International with United Airlines. For the past decade, many families served by CBSS and the Tri-Area Family Engagement have enjoyed this amazing “trip to the North Pole.” Click on the headings below to enjoy Ellen’s blog posts –>
Family Celebration Photo Album
(Click on images to enlarge)
Posted in order received:
Row 1: —Jamie Stepanek——-Sarah Nellinson——Neo———–Elijah Jimenez
Row 2: —Paul Khouri———-–—Maryn L.–—————Your child/family!
CBSS Family Activity Photo Albums
Fantasy Flight Albums (Annual December Event)
— Fantasy Flight 2017 story & photos here…
— Fantasy Flight 2016 story & photos here…
— Read a recent news story on this activity here…
— Fantasy Flight 2015 (& parent event blog) here…
— Fantasy Flight 2014 (photos & story) here…
— Fantasy Flight 2013 here…
— Fantasy Flight 2012 here…
— Fantasy Flight 2011 here…
— Fantasy Flight 2010 here…
— Fantasy Flight 2009 here…
— Fantasy Flight 2008 here…
— Fantasy Flight 2007 here...
Family Leadership Weekend
–> 2016 — Information and photos here…
–> 2015 — Information and photos here…
Family “Day At the Farm” Activity
–> 2017 — Information and photos here…
–> 2016 – Information and photos here…
–> 2015 – Read the story and view photos here…
Family “Go Baby Go!” Car Adaption Activity
–> 2017 – Information and photos here…
CBSS Foundation Activity Photo Albums
Has your child or family been a part of CBSS across the years?
We would like to celebrate your child and/or family —
playing or learning, at home or at school or in the community.
You can simply send us a photo, a video, artwork,
or whatever you would like to share,
to celebrate your child and family journey,
and we will add it to our template and the Family Album.
We also encourage you to share your
child’s name, age, diagnosis or nature of sensory impairment…
Include a favorite activity, learning style, and/or achievement…
Don’t forget to include a photo… (e-mail to DrJeni2008@gmail.com).
(Please sign our Photo & Video Release Form here...)
You send us the information, and we will
create a Family Spotlight Celebration for this page!